For anyone who is interested in seeing more pictures of trevors surgery just visit>>>>>http://photobucket.com/albums/v316/tntmom3011
I have also inclosed a copy of his updates from the University of Iowa Care Page.......
January 14, 2005 at 07:37 PM CST
Trevor was admitted at 5:45 this morning and the actual surgery began at 7. No news until 11am when they called saying that the doctor would be out in an hour. Finally at 12:30 Dr. Menezes arrived to tell us that the procedure went "excellent". They cyst was completely removed and it was the size of an orange. He is now left with an empty space that was manually filled with mimiced cerebral spinal fluid. They hope that the brain will soon expand back to it's normal size and shape. As of 7:30 pm Trevor is in pediatrics intensive care untit. They are monitoring all his vitals and making sure he recovers well to be put out onto regular floor tomorrow. He keeps waking up pulling at the IV's in each arm so they had to tie his arms down to the bed. When he wakes up he is screaming for mommy and daddy and saying "owie". I am heading back to check on daddy and Trevor now. Mor
January 15, 2005 at 01:02 PM CST
As of this morning Trevor is doing a little better. He is still waking up screaming and fighting. He is in pain from his IVs and tries to rip at them when he is screaming. He wants to be up and moving around but he can't so he is uncomfortable. We (mom and dad) are trying all we can to help him be comfortable and calm down. We want him to eat and drink real food and not have to depend on the IV for nourishment. He is having to stay in PICU again tonight per Dr. Menezes and may go to the floor and get out of the PICU. They are going to remove the IV in his leg and the vitals pads on his chest when he moves. His head itself is not bothering him yet. He doesn't like the turbin on his head but he will have to get through it.
I will update this again when something new is happening. Thanks for looking.
January 18, 2005 at 06:23 PM CST
Trevor got to go home this afternoon. He got fitted for a helmet that he has to wear for 12 weeks and was released. He is doing wonderful aside from the imbalance. He is real wobbly now and falls over quite a bit. Not sure if it's a result of the surgery or just from being in bed for 5 days. Well I put pictures up today and will keep updating his progress frequently.
January 19, 2005 at 06:54 PM CST
Trevor is doing ok today. Got a big scare this morning. He was sleeping on our bedroom floor and took it upon himself to go to the living room couch to sleep. He ended up rolling off the bed and had to be rushed back to the hospital to check for internal bleeding. Other wise he is doing fine. He has started to get used to the helmet that he has to wear for 12 weeks. Alot of whining still and screaming I would assume from headaches. He still hasn't regained full balance yet but I am sure it will come with time.
January 20, 2005 at 02:55 PM CST
Trevor is back on the move again. He is up playing with his brother and the dogs now like nothing ever happened. He wears the helmet well now too. Our only main concern is getting him to take his medicine. His is on phenobarbital which is for anti-seizures and used as a tension releiver. It is liquid and he just spits it back in our faces. His tylenol are pills and he won't chew them either. One step at a time, I sure I will figure something out
I have also inclosed a copy of his updates from the University of Iowa Care Page.......
January 14, 2005 at 07:37 PM CST
Trevor was admitted at 5:45 this morning and the actual surgery began at 7. No news until 11am when they called saying that the doctor would be out in an hour. Finally at 12:30 Dr. Menezes arrived to tell us that the procedure went "excellent". They cyst was completely removed and it was the size of an orange. He is now left with an empty space that was manually filled with mimiced cerebral spinal fluid. They hope that the brain will soon expand back to it's normal size and shape. As of 7:30 pm Trevor is in pediatrics intensive care untit. They are monitoring all his vitals and making sure he recovers well to be put out onto regular floor tomorrow. He keeps waking up pulling at the IV's in each arm so they had to tie his arms down to the bed. When he wakes up he is screaming for mommy and daddy and saying "owie". I am heading back to check on daddy and Trevor now. Mor
January 15, 2005 at 01:02 PM CST
As of this morning Trevor is doing a little better. He is still waking up screaming and fighting. He is in pain from his IVs and tries to rip at them when he is screaming. He wants to be up and moving around but he can't so he is uncomfortable. We (mom and dad) are trying all we can to help him be comfortable and calm down. We want him to eat and drink real food and not have to depend on the IV for nourishment. He is having to stay in PICU again tonight per Dr. Menezes and may go to the floor and get out of the PICU. They are going to remove the IV in his leg and the vitals pads on his chest when he moves. His head itself is not bothering him yet. He doesn't like the turbin on his head but he will have to get through it.
I will update this again when something new is happening. Thanks for looking.
January 18, 2005 at 06:23 PM CST
Trevor got to go home this afternoon. He got fitted for a helmet that he has to wear for 12 weeks and was released. He is doing wonderful aside from the imbalance. He is real wobbly now and falls over quite a bit. Not sure if it's a result of the surgery or just from being in bed for 5 days. Well I put pictures up today and will keep updating his progress frequently.
January 19, 2005 at 06:54 PM CST
Trevor is doing ok today. Got a big scare this morning. He was sleeping on our bedroom floor and took it upon himself to go to the living room couch to sleep. He ended up rolling off the bed and had to be rushed back to the hospital to check for internal bleeding. Other wise he is doing fine. He has started to get used to the helmet that he has to wear for 12 weeks. Alot of whining still and screaming I would assume from headaches. He still hasn't regained full balance yet but I am sure it will come with time.
January 20, 2005 at 02:55 PM CST
Trevor is back on the move again. He is up playing with his brother and the dogs now like nothing ever happened. He wears the helmet well now too. Our only main concern is getting him to take his medicine. His is on phenobarbital which is for anti-seizures and used as a tension releiver. It is liquid and he just spits it back in our faces. His tylenol are pills and he won't chew them either. One step at a time, I sure I will figure something out
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